Manisha Kumari

Celiac disease (CD) is a multisystem chronic inflammatory disorder with an autoimmune component in genetically susceptible individuals elicited by gluten and related prolamines. CD is becoming a common disorder arising at any age with a broad spectrum of symptoms ranging from intestinal to extraintestinal manifestations. Extraintestinal symptoms being more common after 2 years of life, can affect various systems and organs of the body. Knowledge of the extraintestinal manifestations of celiac disease is of utmost importance for the diagnosis of CD. Owing to the high risk of complications among the undiagnosed cases of CD, patients with extraintestinal manifestations should undergo appropriate diagnosis and treatment for CD.   Keywords: Celiac disease, Extraintestinal manifestations.

Background: Nephrotic syndrome, the most common renal disease in pediatric age group, is responsible for frequent hospitalization of children. As parents are the most responsible person for care of their children, it is necessary for them to be aware and have knowledge regarding strict adherence to therapeutic regimen, about the disease recurrence and measures for adequate care of their child’s health. An information booklet on nephrotic syndrome can help the caregivers in understanding the disease process and in maintaing their child’s health. Aim: Effect of an information booklet on nephrotic syndrome regarding knowledge and attitude of caregivers towards care of children with nephrotic syndrome in tertiary level centre of Bihar. Materials and Methods: This cross sectional study was carried out on admitted patients in Indira Gandhi Institute of Medical Science, Bihar from January 2021 to December 2021. An information booklet on nephrotic syndrome was given to caregivers of children diagnosed with nephrotic syndrome. About 50 parents/caregivers were interviewed with a preformed structured questionnaire before and after reading the information booklet. Results: Of 50 respondents, an overall improvement in knowledge increased from 18% in pretest to 80% in post test. This result proves that the information booklet helped in improving the knowledge of caregivers towards care of their children. Conclusions: The present study concluded that there was significant improvement in knowledge of caregivers after administrating information booklet. Keywords: Nephrotic syndrome, Awareness, Knowledge, Attitude, Information booklet